Oh, how I hate posting without a picture to share! It was either that or not post today, and I really wanted to share some thoughts with you.
The meeting with Levi's therapists & case manager wasn't as hard as I expected it to be. I think part of that was knowing that all of you who read my thoughts here were concerned about it. Many of you asked how I was feeling on the days leading up to it and have showed interest and support since I wrote about how heavily it was weighing on my heart. That gives me so much strength, and I thank you...from the bottom of my heart. (Which reminds me of a card I once saw a card that said, "Thank you from the bottom of my butt...well it's much bigger than my heart!" Ha!)
This meeting was focused more on goals. "This goal was met... This goal was not met... This is a new goal we are setting..." It was much easier than hearing where he is at compared to a typically developing child. We are looking in to applying for more therapy hours for him. I have mixed emotions about that. It can be tedious making sure he has his meds at the right times, scheduling therapy appointments, planning all the extra doctor appointments and check-ups, and working with him on a day-to-day basis reinforcing what the therapists are doing. So adding more is an overwhelming thought, but so is the fact that he is 19 months and not even really crawling. I had hoped he'd be walking by age 2, but that is not looking like a possibility at this point.
I think a big part of what makes those meetings so emotional for me is the blame I put on myself. I know it isn't really logical, but imagine sitting around a table with your child's teachers. Each of them keep telling you that your child is behind the others and needs to learn how to do this, and this, and this. They are all doing their part, and you child still hasn't met the goals. Your child isn't lazy and is so young, she needs you to help her reach those goals.
I am at home with Levi most of the time, so I feel like I am the one responsible for challenging him and helping him. Yet I still have to accept his limitations. It's like I can't win either way. That is why those meetings are so hard for me. The stuff I can usually push to the back of my mind is right there in plain sight, and I feel like the evaluation is about me. When he was little, I kept hearing how great he was doing & how much I work with him...not happening so much any more.
Switching gears... I am so excited to share that a young adult with Ds in our area got her driver's permit last week! How exciting is that?!
Kelle Hampton, who writes my favorite blog, had a magnificent post yesterday that really touched me. She included many photos of people with Down syndrome fulfilling their dreams. Click here to see it. The post is part of a fundraiser for the National Down Syndrome Society in honor of her daughter's birthday. Last year she set a goal to raise $15,000 and ended up raising $100,000!!!! (Remember the video she made that Levi & I were in?) I can't wait to see what she does this year. Why hasn't she been on Good Morning America or something like that?
Have a fantastic rest of the week. We may get some snow tomorrow. I am almost done with my laundry room makeover. My next Tuesday Tidbit will blow the others out of the water. It will include my first step-by-step tutorial! Stay tuned!
And thanks for taking the time to stop by. I mean that...from the bottom of my butt!
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It would make my day!